Beatitudes Community

Campus & Partners Turn AZ Capitol Purple for Alzheimer’s & Brain Awareness Month

Before we get into the bulk of this article, we would like to preface it by mentioning that the both of us, Beatitudes Campus employee, Suzette Armijo, and friend of the campus, Kathy Ritchie, are former caregivers. Suzette’s grandmother suffered from Alzheimer’s disease. She passed away in 2012. Kathy’s mother suffered from Frontotemporal Degeneration, a lesser-known type of dementia. She passed away in 2014 in the Health Care Center here on Campus.

Governor Doug Ducey has proclaimed June to be Alzheimer’s Awareness Month. While the Governor frequently issues proclamations, for those of us who have been directly affected by Alzheimer’s disease or another dementia, this is a step in the right direction in terms of awareness. The Governor is paying attention. Now, we must link arms and continue to remind Governor Ducey, and the world, that this disease is not going away.

The reality is, most Americans cannot afford this disease. According to the Alzheimer’s Association, in 2015, more than 15 million caregivers provided an estimated 18.1 BILLION hours of unpaid care. We must do better. After all, to quote Mahatma Ghandi, “A nation’s greatness is measured by how it treats its weakest members.”

Beatitudes Campus has been in partnership with the Central Phoenix Advocates for Dementia Awareness or CADA. As co-founders of this small, but mighty, grassroots organization, we are proud to see this strong partnership. We started this group, in part, to preserve the memory of our loved ones and to share our experiences, which, more often than not, were difficult. When you lose a grandparent, parent or any loved one to dementia, the grief lingers. You simply cannot walk away from what happened. You just don’t move on.

The reality is, it takes compassion and a community to endure such an ordeal. Our Campus and CADA believe that we have a responsibility to our neighbors and our hope is to provide them with the tools and resources needed to endure such a devastating loss.

We are also committed to awareness and advocacy. There will be no solution, no cure, until we, as a society, decide to make this a priority. It is important to make noise, to sound the alarm switch we did Sunday, June 12.

Beatitudes Campus and CADA partnered with AARP Arizona, Arizona Caregiver Coalition, Banner Alzheimer’s Institute, Brain Injury Alliance of Arizona, Duet and Hospice of the Valley to turn the lights on the Capitol Dome purple.

Lin Sue Cooney from Hospice of the Valley was the event’s keynote speaker. She spoke about the importance of community and caring for our neighbors as we prepare for this silver tsunami. This kind of caregiving takes a village, and we have an obligation as neighbors to help those who are on this heartbreaking journey.

If you would like to get involved with CADA or any of our partners mentioned in this article, please contact Suzette Armijo with Beatitudes at Home at Ext. 8529 or 602.544.8529. *

 

 

Beatitudes Campus hosting Virtual Dementia Tour in June

Beatitudes Campus will host the Virtual Dementia Tour, a unique and individual experience in a simulated environment created to better understand the physical and mental challenges that those with dementia face. During a Virtual Dementia Tour experience, participants are guided through everyday tasks and exercises while outfitted with devices that alter their senses. The Virtual Dementia Tour is sponsored by Western Arizona Council of Governments and the Governor’s Advisory Council on Aging. The group is inviting first responders and elected officials to take the tour

The Virtual Dementia Tour is a way to more fully understand the environment surrounding a person who has trouble thinking. It employs four components to alter sense perception and simulate the day-to-day experiences that people with dementia and Alzheimer’s disease have. Goggles impair vision while headphones simulate hearing difficulties, with sounds varying in decibel levels. Shoe inserts compromise mobility and special gloves simulate atrophy of sensory skills.

 “Beatitudes Campus is pleased to host this tour sponsored by Western Arizona Council of Governments and the Governor’s Advisory Council on Aging,” says Cheryl Knupp, senior vice president of health services. “Having first responders experience what a person with dementia experiences may assist them in adapting their approach to lessen the fear or confusion the person with trouble thinking may be feeling.”

Tours will be conducted on June 8-9, 2016, from 8 am to 5 pm. To schedule a 20-minute tour session, please contact the Governor’s Advisory Council on Aging at 602-542-4710.

The Longest Day

I have some exciting news to share with you! To begin, on June 21st a small, yet powerfully motivated group of volunteer community leaders focused on dementia and Alzheimer’s awareness, had a successful event called The Longest Day. The Longest Day is a team event held annually by the Alzheimer’s Association on the summer solstice which is the longest day of the year. Through the duration of the sunrise to sunset event it symbolizes the challenging journey of those living with Alzheimer’s disease and other dementia’s as well as their caregivers. The group decided that for their event they would have a day of yoga. And can you believe it ended up falling on the same day as International Day of Yoga! A perfect fit.
Longest Day15.7 million family and friends provide care to people with Alzheimer’s and other dementia’s in the United States alone. You may not know this, but Alzheimer’s Disease is the 6th leading cause of death in the U.S. and the only one in the top 10 that has no way to prevent, slow down or stop it. I am sure we all understand why awareness and support are so important for this cause. Unfortunately, many of us know that dementia does not care about your gender, race or political views (whether blue or red). I find it very interesting that the Alzheimer’s color for awareness is purple. As a constituent, I believe part of my job is to make sure the leaders within our State and Nation know that, just like the disease, it doesn’t matter which side of the fence they are on. This is a national crisis that we all need to come together to end.

Now to OUR big news—the group came to the campus with an amazing opportunity to take awareness to another level. They had a vision that, not only on June 21st should we honor those caregivers but for a month thereafter. Their thought was to turn our State Capitol purple for the cause! Beatitudes Campus graciously accepted this amazing partnership, and since June 21st until July 20th our State Capitol is lit a beautiful deep purple. I am proud to know that, I work for an organization that not only provides great care and awareness within our own walls, but also cares a great deal about the community and state we reside in. Over the next few weeks, we are planning some great ways to let the rest of our state know of this feat we have accomplished and why. We hope that you can help us in sharing our news.

It’s a proud day to be a part of this campus!

Online Education: Dementia Dialogues Webinars

As a caregiver of someone with dementia, your time is precious and sometimes traveling to receive ongoing education is simply not possible. Join us for Dementia Dialogues, where we bring dementia education to you online! Dementia Dialogues offers a different, pertinent webinar topic each month. Tune in from the comfort of your home or office and learn from experts in dementia care!

Dementia Dialogues are meant to provide a caregiver with helpful information and tools to better understand and care for loved ones living with dementia. The series will be fully accessible from anywhere at any time with full lecture information available online and in accompanying audio versions.

Webinars will be hosted on the third Wednesday of each month from Noon to 1PM in the Admin Conference room. Every month, a new topic surrounding Alzheimer’s and dementia care will be discussed by experts and guest caregivers. Limited space is available in the Conference Room so please come early, if we outgrow the space we will look to move to a bigger area.

The Topics that will be covered on the Webinar are:

  • Planning for Care Across the Stages of Dementia (March 18th);
  • Alzheimer’s Medications: What They Are, What They Aren’t and What You Need to Know (April 15th);
  • Planning Successful Travel (May 20th);
  • Men as Caregivers (June 17th);
  • Understanding Psychosis (July 15th);
  • Maintaining Realistic Expectations as Dementia Progresses (August 19th);
  • Best Lessons from Powerful Tools for Caregiving (September 16th);
  • How and When to Execute Powers of Attorney (October 21st);
  • Preparing for Holidays (November 18th);
  • The Gift of Presence (December 16th).